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Given the horrendous human tragedy in Ukraine, it seems almost crass to talk about skin-deep problems right now. (If you are wondering how you can help vitiligo community in Ukraine, scroll down the Donate section.)
Yet, the purpose of this newsletter is to report on the latest developments in vitiligo. And there are great products and innovations on the horizon that will provide relief from facial vitiligo and improve skin appearance overall.
This year’s American Academy of Dermatology Annual Meeting in Boston has been replete with important new data on treatments for a variety of skin diseases, including vitiligo.
Finally, it looks like vitiligo may actually have the first official therapy. Ruxolitinib cream (Opzelura) demonstrated a ≥ 90% improvent in 30% patients' facial vitiligo after 52 weeks of treatment. The U.S.
FDA will review Incyte's application seeking approval of ruxolitinib to treat vitiligo on July 18th.
An upcoming review paper adds that "concurrent UVB phototherapy appears to improve efficacy of JAK inhibitors for vitiligo."
In the video interview from the AAD sidelines, Prof. John Harris explains the Promising Future of Vitiligo Treatment and how JAK inhibitors and biologic therapy may advance the field from "Iron Age" era treatment strategy.
☎️ Take part in an interview study and earn $125
Global Patients is conducting paid interviews with vitiligo patients aged from 6 to 12 years and their caregivers. A 60-minute phone interview will help researchers better understand quality of life of those affected by vitiligo. By the same token, you can earn $125 for sharing your valuable insights.
💊 On the Clinical Trials Hub page you'll find other trial announcements, like from Vitiligo Center at UMass in Boston, MA or Tel-Aviv Sourasky Medical Center in Israel.
🎥 MORE THAN OUR SKIN wins Bronze for the Best Health Special Project in the Inaugural Anthem Awards 2022
This documentary is exploring the depths and effects of living with Vitiligo through the stories of five extraordinary women: Valarie, Millicent, Patricia, Alicia, and Katrina. The film tells a story of these women who found strength after the pain; a newfound resilience; and the mission to help others find a way to live life to the fullest. Watch trailer
Until later,
Yan Valle CEO VR Foundation
A NO-NONSENSE GUIDE TO VITILIGO
Drawing on mountains of recent research, as well as the timeless wisdom of traditional healers, the author dissects vitiligo and the uncomfortable truth that comes with it. He dashes from the root cause through symptoms and treatments to future lifestyle, so you can choose the proper therapy or correct the most common treatment mistakes. Paperback and ebook from Amazon, iBooks or Google Play.
Also in Spanish: Una Guia Pertinente Para El Vitiligo in paperback and ebook.
👉🏻 Also in Russian: Путеводитель по витилиго will be available online soon.
VITILIGO: A STEP-BY-STEP GUIDE TO DIAGNOSIS, TREATMENT AND PROPHYLAXIS
A collection of ten proven clinical protocols for specialists regarding how to diagnose, treat and follow-up with vitiligo patients. Paperback and ebook.
Check out our BOOKSTORE for ways to purchase this and other books in ebook and paperback formats.
Urgent funding is needed to help members of the newly established Vitiligo Community in Ukraine. Donated funds will go toward creating a website, providing basic supplies, medical assistance and other resources as community members are now forced to rebuild their lives.
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